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Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016)

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Abstract

Purpose

The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens.

Methods

Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778–80, 2007) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years.

Results

The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. “Cure” refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. The care of a child with cancer should include complete and honest information for parents and the child.

Conclusions and implication for cancer survivors

Some members of the previous expert panel, as well as new invited experts, met again in Erice to review the Erice Statement, producing a revised version including update and integration of each of the ten points. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin on October 2016 (see Annex 1).

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Reference

  1. Haupt R, Spinetta JJ, Ban I, et al. Long term survivors of childhood cancer: cure and care. The Erice Statement. Eur J Cancer. 2007;43(12):1778–80.

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Acknowledgments

The Erice workshop was organized thanks to the support of the G. Gaslini Foundation, Foundation MBBM, AIEOP, FIAGOP, and the M. Letizia Verga Committee. We thank Ms. Carla Manganini for her excellent secretarial and editorial assistance.

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Authors and Affiliations

  1. Department of Pediatrics, University of Milano-Bicocca/Foundation MBBM, Hospital San Gerardo, Via Pergolesi 33, 20900, Monza, Monza and Brianza, Italy

    Momcilo Jankovic & Andrea Biondi

  2. Epidemiology and Biostatistics Section, IRCCS Institute Giannina Gaslini, Genoa, Italy

    Riccardo Haupt

  3. Department of Psychology, San Diego State University, San Diego, CA, USA

    John J. Spinetta

  4. Hospital for Children and Adolescents, University of Erlangen-Nürnberg, Erlangen, Germany

    Joern D. Beck

  5. LESS Group, Hospital for Children and Adolescents, University of Lübeck, Lübeck, Germany

    Joern D. Beck

  6. Boyne Research Institute, Drogheda, Ireland

    Julianne Byrne

  7. Department of Pediatric Hematology and Oncology, University Children’s Hospital, Bonn, Germany

    Gabriele Calaminus

  8. Department of Pediatrics and Adolescent Medicine, Division of Pediatric Haematology/Oncology, Medical University of Graz, Graz, Austria

    Herwig Lackner

  9. Department of Medicine, Duke Cancer Institute, Durham, NC, USA

    Kevin Oeffinger

  10. St. Jude Children’s Research Hospital, Memphis, TN, USA

    Melissa Hudson

  11. Department of Paediatric and Adolescent Haematology and Oncology, and Children’s BMT Unit, Great North Children’s Hospital, Royal Victoria Infirmary, and Northern Institute of Cancer Research, Newcastle University, Newcastle upon Tyne, UK

    Roderick Skinner

  12. Center for Cancer and Blood Disorders, Children’s National Medical Center, The George Washington University School of Medicine and Health Sciences, Washington, D.C., USA

    Gregory Reaman

  13. Department of Pediatric Oncology, Academic Medical Center—Emma Children’s Hospital, Amsterdam, The Netherlands

    Helena van der Pal & Leontien Kremer

  14. The Princess Maxima Center for Pediatric Oncology in Utrecht, Utrecht, The Netherlands

    Leontien Kremer

  15. Dutch Childhood Cancer Parent Organisation (VOKK), Nieuwegein, The Netherlands

    Jaap den Hartogh

  16. Department of Health Sciences and Health Policy, Universität Luzern, Luzern, Switzerland

    Gisela Michel

  17. St. Anna Kinderspital, Wien, Austria

    Eva Frey

  18. 2nd Department of Pediatrics, Semmelweis University, Budapest, Hungary

    Edit Bardi

  19. Kepler Universitätsklinikum, Linz, Austria

    Edit Bardi

  20. Centre for Childhood Cancer Survivor Studies, Institute of Applied Health Research, University of Birmingham, Birmingham, UK

    Michael Hawkins

  21. Youth Cancer Europe, Vilnius, Lithuania

    Katie Rizvi

  22. Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

    Monica Terenziani

  23. School of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy

    Maria Grazia Valsecchi

  24. Childhood Cancer International (CCI), Nieuwegein, The Netherlands

    Gerlind Bode

  25. Department of Paediatric Oncology, Children’s Hospital for Wales, Heath Park, Cardiff, UK

    Meriel Jenney

  26. Cancer and Radiation, Unit 1018 INSERM, University of Paris-Saclay, Gustave Roussy, 39, rue Camille Desmoulins, 94805, Villejuif CEDEX, France

    Florent de Vathaire

  27. Department of Clinical Sciences, Pediatrics, Skane University Hospital, Lund University, Lund, Sweden

    Stanislaw Garwicz & Lars Hjorth

  28. Department of Paediatric Oncology, Great Ormond Street Hospital for Children, NHS Foundation Trust, London, UK

    Gill A. Levitt

  29. German Childhood Cancer Registry (GCCR), Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center, Mainz, Germany

    Desiree Grabow

  30. Swiss Childhood Cancer Registry, Institute of Social and Preventive Medicine, University of Bern, Finkenhubelweg 11, 3012, Bern, Switzerland

    Claudia E. Kuehni

  31. Klinik für Kinder und Jugendmedizin, Universitätsklinikum Schleswig-Holstein, Campus Kiel, Kiel, Germany

    Martin Schrappe

Authors
  1. Momcilo Jankovic
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  2. Riccardo Haupt
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  3. John J. Spinetta
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  4. Joern D. Beck
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  5. Julianne Byrne
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  6. Gabriele Calaminus
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  7. Herwig Lackner
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  8. Andrea Biondi
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  9. Kevin Oeffinger
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  10. Melissa Hudson
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  11. Roderick Skinner
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  12. Gregory Reaman
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  13. Helena van der Pal
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  14. Leontien Kremer
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  15. Jaap den Hartogh
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  16. Gisela Michel
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  17. Eva Frey
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  18. Edit Bardi
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  19. Michael Hawkins
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  20. Katie Rizvi
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  21. Monica Terenziani
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  22. Maria Grazia Valsecchi
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  23. Gerlind Bode
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  24. Meriel Jenney
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  25. Florent de Vathaire
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  26. Stanislaw Garwicz
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  27. Gill A. Levitt
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  28. Desiree Grabow
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  29. Claudia E. Kuehni
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  30. Martin Schrappe
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  31. Lars Hjorth
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participants in PanCare

Corresponding author

Correspondence to Momcilo Jankovic.

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Conflict of interest

The authors declare that they have no conflict of interest.

Ethical approval

This article does not contain any studies with human participants or animals performed by any of the authors.

Electronic supplementary material

ANNEX 1

Childhood Cancer International (CCI) Survivors Network. Declaration of Dublin. Dublin, October 18, 2016 (PDF 296 kb)

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Cite this article

Jankovic, M., Haupt, R., Spinetta, J.J. et al. Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016). J Cancer Surviv 12, 647–650 (2018). https://doi.org/10.1007/s11764-018-0701-0

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  • DOI: https://doi.org/10.1007/s11764-018-0701-0

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