Elsevier

Social Science & Medicine

Volume 53, Issue 9, November 2001, Pages 1191-1204
Social Science & Medicine

Health needs of the Roma population in the Czech and Slovak Republics

https://doi.org/10.1016/S0277-9536(00)00419-6Get rights and content

Abstract

In the growing literature on the human rights of Roma people in Central Europe, their relatively poor health status is often mentioned. However, little concrete information exists about the contemporary health status of the Roma in this region. We sought information on the health of the Roma in two of countries with significant Roma minorities, the Czech and Slovak Republics, by means of systematic searches for literature on the health of Roma people published in Czech or Slovak or by authors from the two countries. Published research on health of the Roma population is sparse. The topics that have received attention suggest a focus on concepts of contagion or social Darwinism, indicating a greater concern with the health needs of the majority populations with which they live. What limited evidence exists indicates that the health needs of the Roma population are considerable. With very few exceptions, the health status of Roma is worse than that of non-Roma population in both countries. The burden of communicable disease among Roma is high and diseases associated with poor hygiene seem to be particularly important. Evidence on health care suggests poor communication between Roma and health workers and low uptake of preventative care. The health needs of Roma lack visibility, not only because of the absence of research but also the absence of advocacy on their behalf. Since 1989, Czech and Slovak researchers have largely turned away from health research on particular ethnic groups. This probably reflects a growing sensitivity about stigmatising Roma, but it also makes it difficult to know how their circumstances might be improved. There is a need for further research into the health of Roma people with particular emphasis on non-communicable disease and for interventions that would improve their health.

Introduction

The recent attempts by groups of Roma families from the Czech Republic and Slovakia to seek asylum in Canada and Britain have focused attention of the media, governments and international agencies on the needs of Roma people. Specifically, the rights of the Roma people have become an issue in negotiations for accession to the European Union. Whilst it is widely believed that the health of Roma people is poorer than the majority population, these inequalities remain largely unresearched. In view of the pressing needs of the Roma people and the emergence of a favourable political environment, it is timely to initiate a comprehensive programme of research on the health problems of the Czech and Slovak Roma populations.

Information on social variation in health of people in Central and Eastern Europe is generally limited. The available data suggests that considerable differences do exist and that the process of economic and political transition generally tends to lead to an increase in health inequality within countries (Shkolnikov, Leon, Adamets, Andreev, & Deev, 1998). We have previously reported an increase in social variation in birth outcomes in the Czech Republic and Estonia during the period of transition, as the groups with lowest education fail to benefit from the changes brought about by the transition. In both countries, there were also considerable differences in mean birth outcomes by marital status and nationality (Koupilova, Bobak, Holcik, Pikhart, & Leon, 1998; Koupilova, Rahu, Rahu, Karro, & Leon, 2000).

Average real income in the Czech Republic decreased by almost 20% between 1989 and 1993, and was still 10% lower in 1995 than in 1989; real wages followed a similar trend. In 1997, real wages in the Czech Republic were at the level of 102% of year 1989. The decline in real income and real wages in Slovakia was even more dramatic. Real wages declined by more than 30% between 1989 and 1993, and in 1997 were still 13% lower than in 1989 (UNICEF, 1999).

Although registered unemployment remained relatively low in the Czech Republic (around 4% in 1997), socio-economic differentials in society clearly increased, as documented by an increase in the Gini coefficient from 20.4 in 1989 to 25.9 in 1997. Registered unemployment is substantially higher in Slovakia (nearly 13% in 1997) (UNICEF, 1999).

The income advantage of education is clearly becoming of increasing importance in both countries in recent years. Although income differences are still smaller than in the West, their appearance at a time of declining average real income has almost certainly increased vulnerability of some, especially the less well educated. This, together with the decline in social benefits, might have produced substantial hardship with a potential to affect health.

Section snippets

Material and methods

We performed systematic literature searches and contacted institutions and individuals potentially involved in studies of Roma health in the Czech Republic and Slovakia. Information from both formal and informal sources was used in producing this review. The World Wide Web was searched using the “Hotbot” engine. We also searched the web-sites of a number of relevant agencies including both national and international institutions and Roma organisations. While some of these sites contained

History, demography and social characteristics

Roma (Romanies, Gypsies) are an ethnic minority of northern Indian origin living in many countries throughout the world. The Roma are particularly numerous in central and eastern Europe and the western part of the former Soviet Union where their presence has been documented since the eleventh century (Crowe, 1995). Their history in this region can be described as a combination of peaceful coexistence and blatant discrimination, with multiple and complex causes among which are their remarkably

Research on Roma health

As noted above, little concrete information exists about the contemporary health status of the Roma in the Czech and Slovak Republics. There are a number of scientific reports from pre-1989 Czechoslovakia that deal with this issue, and when outbreaks of infectious diseases occur in Roma communities, they are usually reported in the Czech, Slovak and Roma press. Since 1989, Czech and Slovak researchers have turned away from health research on particular ethnic groups. This probably reflects a

Initiatives to improve the health of Roma people

The Government of the Czech Republic approved a “Report on the Situation of the Romani Community in the Czech Republic and Government Measures Assisting its Integration in Society” on 29 October 1997. In the resolution, the Government requested the minister of health to “ascertain the needs for specific health care for the Roma population in the Czech Republic, including suggestions regarding organisational and preventative measures” (Report on the situation of the Romany community, 1997). A

Mortality and life expectancy

Separate statistics on death and morbidity among ethnic groups are not officially collected in the Czech or Slovak Republic and the Roma population is not separately categorised in statistical research about health care. However, data from before the 1989 revolution suggested that mortality was higher for Roma than for ethnic Czechs and Slovaks, and it is unlikely that the situation has been greatly improved in the last 10 years. Kalibova (1989) derived an estimate of the life expectancy of the

Discussion

We have performed systematic searches and made contacts with those potentially involved in studies of Roma health in the Czech Republic and Slovakia. However, this review is inevitably subject to the usual limitations facing any literature searches, such as incomplete ascertainment of papers and publication bias (McKee & Britton, 1997). The scale of the challenges is, however, greater than would be the case for many other topics.

Perhaps the most important finding from this study is the very

Health needs of the Roma population — a way forward?

Although the evidence is limited, the health needs of the Roma population seem great (Table 1). There is a need to move this issue higher up the public health agenda while recognising the need for great political sensitivity. There are, however, many obstacles to so doing. (McKee, Zwi, Koupilova, Sethi, & Leon, 2000). The health needs of the Roma population have had little visibility, reflecting both a lack of research and of effective advocacy (Hajioff & McKee, 2000). In the countries

Acknowledgements

The literature searches in the Czech and Slovak Republics were conducted by a team based at Masaryk University in Brno who drew upon experience from earlier projects on “health needs assessment” and “cultural and social determinants of health care” (IGA MZ NO 5687-3/1999). The team was led by Jan Holčı́k. Zuzana Blažková, Pavlı́na Kaňová and Helena Malenová performed the literature searches and conducted surveys among the Roma organisations.

We are grateful to Kvĕta Rimárová of the Department of

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