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Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation

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Abstract

Raising a child with an autism spectrum disorder (ASD) can be an overwhelming experience for parents and families. The pervasive and severe deficits often present in children with ASD are associated with a plethora of difficulties in caregivers, including decreased parenting efficacy, increased parenting stress, and an increase in mental and physical health problems compared with parents of both typically developing children and children with other developmental disorders. In addition to significant financial strain and time pressures, high rates of divorce and lower overall family well-being highlight the burden that having a child with an ASD can place on families. These parent and family effects reciprocally and negatively impact the diagnosed child and can even serve to diminish the positive effects of intervention. However, most interventions for ASD are evaluated only in terms of child outcomes, ignoring parent and family factors that may have an influence on both the immediate and long-term effects of therapy. It cannot be assumed that even significant improvements in the diagnosed child will ameliorate the parent and family distress already present, especially as the time and expense of intervention can add further family disruption. Thus, a new model of intervention evaluation is proposed, which incorporates these factors and better captures the transactional nature of these relationships.

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References

  • Abidin, R. R. (1995). Parenting stress index: Professional manual (3rd ed.). Odessa, FL: Psychological Assessment Resources.

    Google Scholar 

  • Allik, H., Larsson, J., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with asperger syndrome or high-functioning autism. Health and Quality of Life Outcomes, 4(1), 1–8. doi: 10.1186/1477-7525-4-1.

    Article  PubMed  Google Scholar 

  • American Psychiatric Association DSM-5 Development. (2010). Retrieved from http://www.dsm5.org/.

  • Anan, R. M., Warner, L. J., McGillivary, J. E., Chong, I. M., & Hines, S. J. (2008). Group intensive family training (GIFT) for preschoolers with autism spectrum disorders. Behavioral Interventions, 23, 165–180. doi:10.1002/bin.262.

    Article  Google Scholar 

  • Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47(4/5), 217–230.

    Article  PubMed  Google Scholar 

  • Baker, J. K., Seltzer, M. M., & Greenberg, J. S. (2011). Longitudinal effects of adaptability on behavior problems and maternal depression in families of adolescents with autism. Journal of Family Psychology, 25(4), 601–609. doi:10.1037/a0024409.

    Article  PubMed  Google Scholar 

  • Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51(9), 702–714. doi:10.1111/j.1365-2788.2007.00960.x.

    Article  PubMed  Google Scholar 

  • Beaumont, R., & Sofronoff, K. (2008). A multi-component social skills intervention for children with asperger syndrome: The junior detective training program. Journal of Child Psychology and Psychiatry, 49(7), 743–753. doi:10.1111/j.1469-7610.2008.01920.x.

    Article  PubMed  Google Scholar 

  • Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism and Developmental Disorders, 17(4), 565–576. doi:10.1007/BF01486971.

    Article  PubMed  Google Scholar 

  • Begeer, S., Gevers, C., Clifford, P., Verhoeve, M., Kat, K., Hoddenbach, E., et al. (2011). Theory of mind training in children with autism: A randomized controlled trial. Journal of Autism and Developmental Disorders, 41(8), 997–1006. doi:10.1007/s10803-010-1121-9.

    Article  PubMed  Google Scholar 

  • Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36(5), 685–695. doi:10.1007/s10803-006-0112-3.

    Article  PubMed  Google Scholar 

  • Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with autism spectrum disorders: A longitudinal replication. Journal of Autism and Developmental Disorders, 39(2), 350–362. doi:10.1007/s10803-008-0632-0.

    Article  PubMed  Google Scholar 

  • Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal adjustment. Journal of Autism and Developmental Disorders, 41, 1675–1685. doi:10.1007/s10803-011-1198-9.

    Article  PubMed  Google Scholar 

  • Benson, P. R., Daley, D., Karlof, K., & Robison, D. (2011). Assessing expressed emotion in mothers of children with autism. Autism, 15(1), 65–82. doi:10.1177/1352351309352777.

    Article  PubMed  Google Scholar 

  • Bibby, P., Eikeseth, S., Martin, N. T., Mudford, O., & Reeves, D. (2002). Progress and outcomes for children with autism receiving parent-managed intensive interventions. Research in Developmental Disabilities, 23, 81–104.

    Article  PubMed  Google Scholar 

  • Bolton, P. F., Golding, J., Emond, A., & Steer, C. D. (2012). Autism spectrum disorder and autistic traits in the avon longitudinal study of parents and children: Precursors and early signs. Journal of the American Academy of Child and Adolescent Psychiatry, 51(3), 249–260.

    Article  PubMed  Google Scholar 

  • Brobst, J. B., Clopton, J. R., & Hedrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24(1), 38–49. doi:10.1177/1088357608322699.

    Article  Google Scholar 

  • Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8(4), 409–423. doi:10.1177/1362361304047224.

    Article  PubMed  Google Scholar 

  • Bronfenbrenner, U. (1979). Contexts of child rearing: Problems and prospects. American Psychologist, 34(10), 844–850. doi:10.1037//0003-066X.34.10.844.

    Article  Google Scholar 

  • Bronfenbrenner, U. (1986). Ecology of the family as a context for human development: Research perspectives. Developmental Psychology, 22(6), 723–742. doi:10.1037//0012-1649.22.6.723.

    Article  Google Scholar 

  • Brooks-Gunn, J., Berlin, L. J., & Fuligni, A. S. (2000). Early childhood intervention programs: What about the family? In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention (2nd ed., pp. 549–577). Cambridge, UK: Camrbridge University Press.

    Chapter  Google Scholar 

  • Brown, H. K., Ouelelette-Kuntz, H., Hunter, D., Kelley, E., Cobigo, V., & Lam, M. (2011). Beyond an autism diagnosis: Children’s functional independence and parents’ unmet needs. Journal of Autism and Developmental Disorders, 41, 1291–1302.

    Article  PubMed  Google Scholar 

  • Carter, A. S., Martínez-Pedraza, F. L., & Gray, S. O. (2009). Stability and individual change in depressive symptoms among mothers raising young children with ASD: Maternal and child correlates. Journal of Clinical Psychology, N/a-N/a. doi:10.1002/jclp.20634.

  • Center for Disease Control and Prevention. (2012, March 30). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Retrieved April 9, 2012, from http://www.cdc.gov/ncbddd/autism/.

  • Chamak, B., Bonniau, B., Oudaya, L., & Ehrenberg, A. (2011). The autism diagnostic experiences of french parents. Autism, 15(1), 83–97. doi:10.1177/1362361309354756.

    Article  PubMed  Google Scholar 

  • Chambless, D. L., Sanderson, W. C., Shoham, V., Johnson, S. B., Pope, K. S., Crits-Christoph, P., et al. (1996). An update on empirically validated therapies. The Clinical Psychologist, 49, 5–18.

    Google Scholar 

  • Coolican, J., Smith, I. M., & Bryson, S. E. (2010). Brief parent training in pivotal response treatment for preschoolers with autism. The Journal of Child Psychology and Psychiatry, 51(12), 1321–1330. doi:10.1111/j.1469-7610.2010.02326.x.

    Article  Google Scholar 

  • Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291. doi:10.1007/s10803-007-0512-z.

    Article  PubMed  Google Scholar 

  • Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., et al. (2010). Randomized, controlled trial of an intervention for toddlers with autism: The early start denver model. Pediatrics, 25(1), E17–E23. doi:10.1542/peds.2009-0958.

    Article  Google Scholar 

  • Drew, A., Baird, G., Baron-Cohen, S., Cox, A., Slonims, V., Wheelright, S., et al. (2002). A pilot randomised control trial of a parent training intervention for pre-school children with autism: Preliminary findings and methodological challenges. European Child and Adolescent Psychiatry, 11, 266–272. doi:10.1007/s00787-002-0299-6.

    Article  PubMed  Google Scholar 

  • Dritschel, B., Wisely, M., Goddard, L., Robinson, S., & Howlin, P. (2010). Judgements of self-understanding in adolescents with asperger syndrome. 1–10. doi:10.1177/1362361310368407.

  • Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427. doi:10.1177/1362361305056081.

    Article  PubMed  Google Scholar 

  • Dunlap, G. (1999). Consensus, engagement, and family involvement for young children with autism. The Journal of The Association for Persons with Severe Handicaps, 24(3), 222–225. doi:10.2511/rpsd.24.3.222.

    Article  Google Scholar 

  • Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.

    Article  PubMed  Google Scholar 

  • Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284.

    Article  PubMed  Google Scholar 

  • Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387. doi:10.1177/1362361309105658.

    Article  PubMed  Google Scholar 

  • Field, S., & Hoffman, A. (1999). The importance of family involvement for promoting self-determination in adolescents with autism and other developmental disabilities. Focus on Autism and Other Developmental Disabilities, 14(1), 36–41. doi:10.1177/108835769901400105.

    Article  Google Scholar 

  • Freedman, B. H., Kalb, L. G., Zaboltsky, B., & Stuart, E. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42, 539–548. doi:10.1007/s10803-011-1269-y.

    Article  PubMed  Google Scholar 

  • Gabriels, R. L., Hill, D. E., Pierce, R. A., Rogers, S. J., & Wehner, B. (2001). Predictors of treatment outcome in young children with autism: A retrospective study. Autism, 5(4), 407–429. doi:10.1177/1362361301005004006.

    Article  PubMed  Google Scholar 

  • Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., & Wu, Y. (2011). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 1–8. doi:10.1016/j.rasd.2011.05.007.

  • Gerard, A. B. (1994). Parent-child relationship inventory (PCRI). Los Angeles, CA: Western Psychological Services.

    Google Scholar 

  • Giallo, R., Wood, C.E., Jellett, R., & Porter, R. (2011). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism, 1–16. doi:10.1177/1362361311416830.

  • Glasberg, B. A. (2000). The development of siblings’ understanding of autism spectrum disorders. Journal of Autism and Developmental Disorders, 30(2), 143–156. doi:0162-3257/00/0400-0143$18.00/0.

    Article  PubMed  Google Scholar 

  • Granger, S., Rivieres-Pigeon, C. D., Sabourin, G., & Forget, J. (2012). Mothers’ reports of their involvement in early intensive behavioral intervention. Topics in Early Childhood Special Education, 32(2), 68–77. doi:10.1177/0271121410393285.

    Google Scholar 

  • Gray, D. E. (1994). Coping with autism: stresses and strategies. Sociology of Health & Illness, 16(3), 275–300. doi:10.1111/1467-9566.ep11348729.

    Article  Google Scholar 

  • Green, J., Charman, T., MacConachie, H., Aldred, C., Slonims, V., Howlin, P., et al. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. The Lancet, 375, 2152–2160. doi:10.1016/S0140-6736(10)60587-9.

    Article  Google Scholar 

  • Greenspan, S. I., & Wieder, S. (1997). Developmental patterns and outcomes in infants and children with disorders in relating and communicating: A chart review of 200 cases of children with autism spectrum diagnoses. The Journal of Developmental and Learning Disorders, 1(1), 1–38.

    Google Scholar 

  • Greenspan, S. I., & Wieder, S. (1999). A functional developmental approach to autistic spectrum disorders. Journal of the Association for Persons with Severe Handicaps, 24(3), 147–161.

    Article  Google Scholar 

  • Grindle, C. F., Kovshoff, H., Hastings, R. P., & Remington, B. (2009). Parents’ experiences of home-based applied behavior analysis programs for young children with autism. Journal of Autism and Developmental Disorders, 39(1), 42–56. doi:10.1007/s10803-008-0597-z.

    Article  PubMed  Google Scholar 

  • Gutstein, S. E., & Whitney, T. (2002). Asperger syndrome and the development of social competence. Focus on Autism and Other Developmental Disabilities, 17(3), 161–171. doi:10.1177/10883576020170030601.

    Article  Google Scholar 

  • Gutstein, S. E., Burgess, A. F., & Montfort, K. (2007). Evaluation of the relationship development intervention program. Autism, 11(5), 397–411. doi:10.1177/1362361307079603.

    Article  PubMed  Google Scholar 

  • Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34, 4–25. doi:10.3109/01460862.2011.555270.

    Article  PubMed  Google Scholar 

  • Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., et al. (2010). The relative risk and timing of divorce in families in children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449–457. doi:10.1037/a0019847.

    Article  PubMed  Google Scholar 

  • Hartley, S. L., Barker, E. T., Seltzer, M. M., Greenberg, J. S., & Floyd, F. J. (2011). Marital satisfaction and parenting experiences of mothers and fathers of adolescents and adults with autism. American Association on Intellectual and Developmental Disabilities, 116(1), 81–95. doi:10.1352/1944-7558-116.1.81.

    Article  Google Scholar 

  • Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47(4/5), 231–237.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107(3), 222. doi:10.1352/0895-8017(2002)1072.0.CO;2.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336.

    Article  PubMed  Google Scholar 

  • Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. doi:10.1111/j.1365-2788.2006.00904.x.

    Article  PubMed  Google Scholar 

  • Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125–137. doi:10.1177/1362361305051403.

    Article  PubMed  Google Scholar 

  • Hoagwood, K. E. (2005). Family-based services in children’s mental health: a research review and synthesis. Journal of Child Psychology and Psychiatry, 46(7), 690–713. doi:10.1111/j.1469-7610.2005.01451.x.

    Article  PubMed  Google Scholar 

  • Hoagwood, K., Jensen, P. S., Petti, T., & Burns, B. J. (1996). Outcomes of mental health care for children and adolescents: I. A comprehensive conceptual model. Journal of the American Academy of Child and Adolescent Psychiatry, 35(8), 1055–1063. doi:10.1097/00004583-199608000-00017.

    Article  PubMed  Google Scholar 

  • Hoffman, C. D., Sweeney, D. P., Hodge, D., Lopez-Wagner, M. C., & Looney, L. (2009). Parenting stress and closeness: Mothers of typically developing children and mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 24(3), 178–187. doi:10.1177/1088357609338715.

    Article  Google Scholar 

  • Howlin, P., & Asgharian, A. (1999). The diagnosis of autism and asperger syndrome: Findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41, 834–839.

    Article  PubMed  Google Scholar 

  • Ingersoll, B., & Dvortcsak, A. (2006). Including parent training in the early childhood special education curriculum for children with autism spectrum disorders. Topics in Early Childhood Special Education, 26(3), 179–187. doi:10.1177/02711214060260030501.

    Article  Google Scholar 

  • Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 337–344. doi:10.1016/j.rasd.2010.4.017.

    Article  Google Scholar 

  • Ivey, J. K. (2004). What do parents expect?: A study of likelihood and importance issues for children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 19(1), 27–33. doi:10.1177/10883576040190010401.

    Article  Google Scholar 

  • Jacobson, N. S., & Truax, P. (1991). Clinical significance: A statistical approach to defining meaningful change in psychotherapy research. Journal of Consulting and Clinical Psychology, 59(1), 12–19.

    Article  PubMed  Google Scholar 

  • Johnson, S. A., Filliter, J. H., & Murphy, R. R. (2009). Discrepancies between self- and parent-perceptions of autistic traits and empathy in high functioning children and adolescents on teh autism spectrum. Journal of Autism and Developmental Disorders, 39, 1706–1714. doi:10.1007/s10803-009-0809-1.

    Article  Google Scholar 

  • Johnston, C., & Mash, E. J. (1989). A measure of parenting satisfaction and efficacy. Journal of Clinical Child Psychology, 18(2), 167–175. doi:10.1207/s15374424jccp1802_8.

    Article  Google Scholar 

  • Jones, T., & Prinz, R. (2005). Potential roles of parental self-efficacy in parent and child adjustment: A review. Clinical Psychology Review, 25(3), 341–363. doi:10.1016/j.cpr.2004.12.004.

    Article  PubMed  Google Scholar 

  • Kaiser, A. P., & Hancock, T. B. (2003). Teaching parents new skills to support their young children’s development. Infants and Young Children, 16(1), 9–21.

    Article  Google Scholar 

  • Kalyva, E. (2010). Multirater congruence on the social skills assessment of children with asperger syndrome: Self, mother, father, and teacher ratings. Journal of Autism and Developmental Disorders, 40, 1202–1208. doi:10.1007/s10803-010-0978-y.

    Article  PubMed  Google Scholar 

  • Kamphaus, R. W., & Reynolds, C. R. (2006). PRQ: Parenting relationship questionnaire manual. Minneapolis, MN: Pearson.

    Google Scholar 

  • Kasari, C., & Lawton, K. (2010). New directions in behavioral treatment of autism spectrum disorders. Current Opinions in Neurology, 23, 137–143. doi:10.1097/WCO.0b013e32833775cd.

    Article  Google Scholar 

  • Kasari, C., Gulsrud, A. C., Wong, C., Kwon, S., & Locke, J. (2010). Randomized controlled caregiver mediated joint engagement intervention for toddlers with autism. Journal of Autism and Developmental Disorders, 40, 1045–1056. doi:10.1007/s10803-010-0955-5.

    Article  PubMed  Google Scholar 

  • Kazdin, A. E., & Weisz, J. R. (1998). Identifying and developing empirically supported child and adolescent treatments. Journal of Consulting and Clinical Psychology, 66(1), 19–36. doi:10.1037//0022-006X.66.1.19.

    Article  PubMed  Google Scholar 

  • Kazdin, A. E., & Weisz, J. R. (2003). Evidence-based psychotherapies for children and adolescents. New York: Guilford Press.

    Google Scholar 

  • Keen, D., Couzens, D., Muspratt, S., & Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorder, 4, 229–241. doi:10/1016/j.rasd.2009.09.009.

    Article  Google Scholar 

  • Kelly, A. B., Garnett, M. S., Attwood, T., & Peterson, C. (2008). Autism spectrum symptomatology in children: The impact of family and peer relationships. Journal of Abnormal Child Psychology, 36(7), 1069–1081. doi:10.1007/s10802-008-9234-8.

    Article  PubMed  Google Scholar 

  • Khanna, R., Madhaven, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 1214–1227.

    Article  PubMed  Google Scholar 

  • Kheir, N., Ghoneim, O., Sandridge, A. L., Al-Ismail, M., Hayder, S., & Al-Rawi, F. (2012). Quality of life of caregivers of children with autism in Qatar. Autism, 1–6. doi:10.1177/1362361311433648.

  • Kim, J., & Mahoney, G. (2004). The effects of mother’s style of interaction on children’s engagement: Implications for using responsive interventions with parents. Topics in Early Childhood Special Education, 24(1), 31–38. doi:10.1177/02711214040240010301.

    Article  Google Scholar 

  • Knott, F., Dunlop, A., & Mackay, T. (2006). Living with asd: How do children and their parents assess their difficulties with social interaction and understanding? Autism¸10(6), 609–617. doi:10.1177/1362361306068510.

  • Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 3, 347–359.

    Article  Google Scholar 

  • Koegel, R. L., & Frea, W. D. (1993). Treatment of social behavior in autism through the modification of pivotal social skills. Journal of Applied Behavior Analysis, 26, 369–377.

    Article  PubMed  Google Scholar 

  • Koegel, R. L., Koegel, L. K., & Brookman, L. I. (2003). Empirically supported pivotal response interventions for children with autism. In A. E. Kazdin & J. R. Weisz (Eds.), Evidence-based psychotherapies for children and adolescents (pp. 341–357). New York: Guilford Press.

    Google Scholar 

  • Koegel, R. L., Koegel, L. K., & Carter, C. M. (1999b). Pivotal teaching interactions for children with autism. School Psychology Review, 28(4), 576–594.

    Google Scholar 

  • Koegel, L. K., Koegel, R. L., Harrower, J. K., & Carter, C. M. (1999a). Pivotal response intervention I: Overview of approach. The Journal of The Association for Persons with Severe Handicaps, 24(3), 174–185. doi:10.2511/rpsd.24.3.174.

    Article  Google Scholar 

  • Koegel, L. K., Koegel, R. L., Hurley, C., & Frea, W. D. (1992a). Improving social skills and disruptive behavior in children withautism through self-management. Journal of Applied Behavior Analysis, 25, 341–353.

    Article  PubMed  Google Scholar 

  • Koegel, R. L., Schreibman, L., Loos, L. M., Dirlich-Wilhelm, H., Dunlap, G., Robbins, F. R., et al. (1992b). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22(2), 205–216. doi:10.1007/BF01058151.

    Article  PubMed  Google Scholar 

  • Koenig, K., Los Reyes, A., Cicchetti, D., Scahill, L., & Klin, A. (2009). Group intervention to promote social skills in school-age children with pervasive developmental disorders: Reconsidering efficacy. Journal of Autism and Developmental Disorders, 39(8), 1163–1172. doi:10.1007/s10803-009-0728-1.

    Article  PubMed  Google Scholar 

  • Krasny, L., Williams, B. J., Provencal, S., & Ozonoff, S. (2003). Social skills interventions for the autism spectrum: Essential ingredients and a model curriculum. Child and Adolescent Psychiatric Clinics of North America, 12(1), 107–122. doi:10.1016/S1056-4993(02)00051-2.

    Article  PubMed  Google Scholar 

  • Krauss, M. W. (2000). Family assessment within early intervention programs. In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention (2nd ed., pp. 290–308). Cambridge, UK: Cambridge University Press.

    Chapter  Google Scholar 

  • Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564–575. doi:10.1037/0002-9432.76.4.564.

    Article  PubMed  Google Scholar 

  • Lam, S., Wong, B. P., Leung, D., Ho, D., & Au-Yeung, P. (2010). How parents perceive and feel about participation in community activities. Autism, 14(4), 359–377. doi:10.1177/1362361309346558.

    Article  PubMed  Google Scholar 

  • Larsson, H. J., Eaton, W. E., Madsen, K. M., Vestegaard, M., Olesen, A. V., Agerbo, E., et al. (2004). Risk factors for autism: Perinatal factors, parental psychiatric history, and socioeconomic status. American Journal of Epidemiology, 161(10), 916–925. doi:10.1093/aje/kwi123.

    Article  Google Scholar 

  • Laugeson, E. A., & Frankel, F. H. (2010). Social skills for teenagers with developmental and autism spectrum disorders: The PEERS treatment manual. New York: Routledge.

    Google Scholar 

  • Laugeson, E. A., Frankel, F., Mogil, C., & Dillon, A. R. (2009). Parent-assisted social skills training to improve friendships in teens with autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(4), 596–606. doi:10.1007/s10803-008-0664-5.

    Article  PubMed  Google Scholar 

  • Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183. doi:10.1111/j.1365-2788.2005.00732.x.

    Article  PubMed  Google Scholar 

  • Lee, L., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147–1160. doi:10.1007/s10803-007-0491-0.

    Article  PubMed  Google Scholar 

  • Leef, J. (2005). A clinical intervention program for children with asperger syndrome and their parents: Promoting children’s social skills and parents’ self-confidence. The Autism NewsLink, 14–15.

  • Little, L. (2002). Differences in stress and coping for mothers and fathers of children with asperger’s syndrome and nonverbal learning disorders. Pediatric Nursing, 28(6), 565–570.

    PubMed  Google Scholar 

  • Little, L., & Clark, R. R. (2006). Wonders and worries of parenting a child with asperger syndrome and nonverbal learning disorder. The American Journal of Maternal Child Nursing, 31(1), 39–44.

    Article  Google Scholar 

  • Lord, C., & Bishop, S. L. (2010). Autism spectrum disorders: Diagnosis, prevalence, and services for children and families. Society for Research in Child Development, 24(2), 1–21.

    Google Scholar 

  • Lord, C., Wagner, A., Rogers, S., Szatmari, P., Aman, M., Charman, T., et al. (2005). Challenges in evaluating psychosocial interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 35(6), 695–708. doi:10.1007/s10803-005-0017-6.

    Article  PubMed  Google Scholar 

  • Losh, M., Childress, D., Lam, K., & Piven, J. (2008). Defining key features of the broad autism phenotype: A comparison across parents of multiple- and single-incidence autism families. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 147B(4), 424–433. doi:10.1002/ajmg.b.30612.

    Article  Google Scholar 

  • Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55(1), 3–9. doi:10.1037//0022-006X.55.1.3.

    Article  PubMed  Google Scholar 

  • Lovaas, O. I., & Smith, T. (2003). Early and intensive behavioral intervention for autism. In A. E. Kazdin & J. R. Weisz (Eds.), Evidence-based psychotherapies for children and adolescents (pp. 325–340). New York: Guilford Press.

    Google Scholar 

  • Lovaas, O. I., Koegel, R., Simmons, J. Q., & Long, J. S. (1973). Some generalization and follow-up measures on autistic children in behavior therapy. Journal of Applied Behavior Analysis, 6, 131–166.

    Article  PubMed  Google Scholar 

  • Lyons, A. M., Leon, S. C., Phelps, C. E., & Dunleavy, A. M. (2010). The impact of child symptom severity on stress among parents of children with asd: The moderating role of coping styles. Journal of Child and Family Studies, 19, 516–524. doi:10.1007/s10826-009-9323-5.

    Article  Google Scholar 

  • Mackintosh, K., & Dissanayake, C. (2006). Social skills and problem behaviors in school aged children with high-functioning autism and asperger’s disorder. Journal of Autism and Developmental Disorders, 36, 1065–1076. doi:10.1007/s10803-006-0139-5.

    Article  Google Scholar 

  • Mackintosh, V. G., Goin-Kochel, R. P., & Myers, B. J. (2012). “What do you like/dislike about the treatments you’re currently using?”: A qualitative study of parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 27(1), 51–60. doi:10.1177/1088357611423542.

    Article  Google Scholar 

  • Mahoney, G., & Perales, F. (2003). Using relationship-focused intervention to enhance the social emotional functioning of young children with autism spectrum disorders. Topics in Early Childhood Special Education, 23(2), 74–86. doi:10.1177/02711214030230020301.

    Article  Google Scholar 

  • Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism, 11(2), 111–122. doi:10.1177/1362361307077506.

    Article  PubMed  Google Scholar 

  • Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116(6), 1480–1486. doi:10.1542/peds.2005-0185.

    Article  PubMed  Google Scholar 

  • Mandell, D. S., Xie, M., Morales, K., Lawer, L., McCarthy, M., & Marcus, S. C. (2011). The interplay of outpatient services and psychiatric hospitalization among Medicaid-enrolled children with autism spectrum disorders. Archives of Pediatric and Adolescent Medicine, 166(1), 68–73.

    Article  Google Scholar 

  • Matheny, A., Wachs, T., Ludwig, J., & Phillips, K. (1995). Bringing order out of chaos: Psychometric characteristics of the confusion, hubbub, and order scale. Journal of Applied Developmental Psychology, 16(3), 429–444. doi:10.1016/0193-3973(95)90028-4.

    Article  Google Scholar 

  • Matson, J. L., Matson, M. L., & Rivet, T. T. (2007). Social-skills treatments for children with autism spectrum disorders: An overview. Behavior Modification, 31(5), 682–707. doi:10.1177/0145445507301650.

    Article  PubMed  Google Scholar 

  • Matson, M. L., Mahan, S., & Matson, J. L. (2009). Parent training: A review of methods for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(4), 868–875. doi:10.1016/j.rasd.2009.02.003.

    Article  Google Scholar 

  • McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: A systematic review. Journal of Evaluation in Clinical Practice, 13(1), 120–129. doi:10.1111/j.1365-2753.2006.00674.x.

    Article  PubMed  Google Scholar 

  • McIntyre, L. L. (2008). Parent training for young children with developmental disabilities: Randomized controlled trial. American Journal on Mental Retardation, 113(5), 356. doi:10.1352/2008.113:356-368.

    Article  PubMed  Google Scholar 

  • Meirsschaut, M., Roeyers, H., & Warreyn, P. (2010). Parenting in families with a child with autism spectrum disorder and a typically developing child: Mother’s experiences and cognitions. Research in Autism Spectrum Disorders, 4, 661–669. doi:10.1016/j.rasd.2010.01.002.

    Article  Google Scholar 

  • Meltzer, L. J. (2011). Factors associated with depressive symptoms in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 361–367. doi:10.1016/j.rasd.2010.05.001.

    Article  Google Scholar 

  • Midence, K., & O’neill, M. (1999). The experience of parents in the diagnosis of autism: A pilot study. Autism, 3(3), 273–285. doi:10.1177/1362361399003003005.

    Article  Google Scholar 

  • Miles, J. H., Takahashi, T. N., Haber, A., & Hadden, L. (2003). Autism families with a high incidence of alcoholism. Journal of Autism and Developmental Disorders, 33(4), 403–415.

    Article  PubMed  Google Scholar 

  • Milgram, N. A., & Atzil, M. (1988). Parenting stress in raising autistic children. Journal of Autism and Developmental Disorders, 18(3), 415–424. doi:10.1007/BF02212196.

    Article  PubMed  Google Scholar 

  • Minjarez, M. B., Williams, S. E., Mercier, E. M., & Hardan, A. Y. (2011). Pivotal response group treatment program for parents of children with autism. Journal of Autism and Developmental Disorders, 41, 92–101. doi:10.1007/s10803-010-1027-6.

    Article  PubMed  Google Scholar 

  • Minuchin, S., & Fishman, H. C. (1981). Family therapy techniques. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Moh, T. A., & Magiati, I. (2012). Factors associated with parental stress and satisfaction during the process of diagnosis of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6, 293–303. doi:10.1016/j.rasd.2011.05.011.

    Article  Google Scholar 

  • Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics, 119(5), E1040–E1046. doi:10.1542/peds.2006-2819.

    Article  PubMed  Google Scholar 

  • Morrison, J. Q., Sansosti, F. J., & Hadley, W. M. (2009). Parent perceptions of the anticipated needs and expectations for support for their college-bound students with asperger’s syndrome. Journal of Postsecondary Education and Disability, 22(2), 78–87.

    Google Scholar 

  • Mugno, D., Ruta, L., D’Arrigo, V. G., & Mazzone, L. (2007). Impairment in quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 5(22). doi:10.1186/1477-7525-5-22.

  • Murray, D. S., Ruble, L. A., Willis, H., & Molloy, C. A. (2009). Parent and teacher report of social skills in children with autism spectrum disorders. Language, Speech, and Hearing Services in Schools, 40(2), 109–115. doi:10.1044/0161-1461(2008/07-0089.

    Article  PubMed  Google Scholar 

  • Nock, M. K., & Kazdin, A. E. (2001). Parent expectancies for child therapy: Assessment and relation to participation in treatment. Journal of Child and Family Studies, 10(2), 155–180.

    Article  Google Scholar 

  • Odom, S. L., Boyd, B. A., Hall, L. J., & Hume, K. (2010). Evaluation of comprehensive treatment models for individuals with autism spectrum disorders. Journal of Autism and Developmental Disorders, 40, 425–436. doi:10.1007/s10803-009-0825-1.

    Article  PubMed  Google Scholar 

  • Olsson, M. B., & Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45(6), 535–543.

    Article  PubMed  Google Scholar 

  • Oosterling, I., Visser, J., Swinkels, S., Rommelse, N., Donders, R., Woudenberg, T., et al. (2010). Randomized controlled trial of the focus parent training for toddlers with autism: 1-year outcome. Journal of Autism and Developmental Disorders, 40, 1447–1458. doi:10.1007/s10803-010-1004-0.

    Article  PubMed  Google Scholar 

  • Orsmond, G. I., Lin, L., & Seltzer, M. M. (2007). Mothers of adolescents and adults with autism: Parenting multiple children with disabilities. In S. J. Taylor (Ed.) Intellectual and Developmental Disabilities, 45(4), 257–270. doi:10.1352/1934-9556(2007)45[257:MOAAAW]2.0.CO;2.

  • Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38(6), 1092–1103. doi:10.1007/s10803-007-0497-7.

    Article  PubMed  Google Scholar 

  • Ozonoff, S., & Miller, J. N. (1995). Teaching theory of mind: A new approach to social skills training for individuals with autism. Journal of Autism and Developmental Disorders, 25(4), 415–433. doi:10.1007/BF02179376.

    Article  PubMed  Google Scholar 

  • Ozonoff, S., Goodlin-Jones, B. L., & Solomon, M. (2005). Evidence-Based Assessment of Autism Spectrum Disorders in Children and Adolescents. Journal of Clinical Child & Adolescent Psychology, 34(3), 523–540. doi:10.1207/s15374424jccp3403_8.

    Article  Google Scholar 

  • Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with asperger syndrome: An application of the double ABCX model of family adjustment. Autism, 9(2), 191–212. doi:10.1177/1362361305049033.

    Article  PubMed  Google Scholar 

  • Phelps, K. W., McCammon, S. L., Wuensch, K. L., & Golden, J. A. (2009). Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder. Journal of Intellectual and Developmental Disability, 34(2), 133–141. doi:10.1080/13668250902845236.

    Article  PubMed  Google Scholar 

  • Pillay, M., Alderson-Day, B., Wright, B., Williams, C., & Urwin, B. (2011). Autism spectrum conditions—enhancing nurture and development (ASCEND): An evaluation of intervention support groups for parents. Clinical Child Psychology and Psychiatry, 16(1), 5–20. doi:10.1177/1359104509340945.

    Article  PubMed  Google Scholar 

  • Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855–864. doi:10.1037/a0013604.

    Article  PubMed  Google Scholar 

  • Pottie, C. G., Cohen, J., & Ingram, K. M. (2009). Parenting a child with autism: Contextual factors associated with enhanced daily parental mood. Journal of Pediatric Psychology, 34(4), 419–429. doi:10.1093/jpepsy/jsn094.

    Article  PubMed  Google Scholar 

  • Quittner, A. L., Glueckauf, R. L., & Jackson, D. N. (1990). Chronic parenting stress: Moderating versus mediating effects of social support. Journal of Personality and Social Psychology, 59(6), 1266–1278. doi:10.1037//0022-3514.59.6.1266.

    Article  PubMed  Google Scholar 

  • Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401. doi:10.1177/014662167700100306.

    Article  Google Scholar 

  • Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. doi:10.1177/0145445509336427.

    Article  PubMed  Google Scholar 

  • Rao, P. A., Beidel, D. C., & Murray, M. J. (2008). Social skills interventions for children with asperger’s syndrome or high-functioning autism: A review and recommendations. Journal of Autism and Developmental Disorders, 38(2), 353–361. doi:10.1007/s10803-007-0402-4.

    Article  PubMed  Google Scholar 

  • Regehr, K., & Feldman, M. (2009). Parent-selected interventions for infants at-risk for autism spectrum disorders and their affected siblings. Behavioral Interventions, 24, 237–248. doi:10.1002/bin.291.

    Article  Google Scholar 

  • Reichow, B., & Volkmar, F. R. (2010). Social skills interventions for individuals with autism: Evaluation for evidence-based practices with a best evidence synthesis framework. Journal of Autism and Developmental Disorders, 40, 149–166. doi:10.1007/s10803-009-0842-0.

    Article  PubMed  Google Scholar 

  • Remington, B., Hastings, R. P., Kovshoff, H., Degli Espinosa, F., Jahr, E., Brown, T., et al. (2007). Early intensive behavioral intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112(6), 418. doi:10.1352/0895-8017(2007)112[418:EIBIOF]2.0.CO;2.

    Article  PubMed  Google Scholar 

  • Rezendes, D. L., & Scarpa, A. (2011). Associations between parental anxiety/depression and child behavior problems related to autism spectrum disorders: The roles of parenting stress and parenting self-efficacy. Autism Research and Treatment, 1–10. doi:10.1155/2011/395190.

  • Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism: Marital stress and support coping. Journal of Autism and Developmental Disorders, 33(4), 383–394.

    Article  PubMed  Google Scholar 

  • Roberts, D., & Pickering, N. (2010). Parent training programme for autism spectrum disorders: An evaluation. Community Practitioner, 83(10), 27–30.

    PubMed  Google Scholar 

  • Rocha, M. L., Schreibman, L., & Stahmer, A. C. (2007). Effectiveness of training parents to teach joint attention in children with autism. Journal of Early Intervention, 29(2), 154–172. doi:10.1177/105381510702900207.

    Article  Google Scholar 

  • Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19(4), 371–379.

    Article  Google Scholar 

  • Rogers, S. J. (2000). Interventions that facilitate socialization in children with autism. Journal of Autism and Developmental Disorders, 30(5), 399–409.

    Article  PubMed  Google Scholar 

  • Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child & Adolescent Psychology, 37(1), 8–38. doi:10.1080/15374410701817808.

    Article  Google Scholar 

  • Ruble, L., McDuffie, A., King, A. S., & Lorenz, D. (2008). Caregiver responsiveness and social interaction behaviors of young children with autism. Topics in Early Childhood Special Education, 28(3), 158–170. doi:10.1177/0271121408323009.

    Article  Google Scholar 

  • Rutter, M. L. (2011). Progress in understanding autism: 2007–2010. Journal of Autism and Developmental Disorders, 41, 395–404. doi:10.1007/s10803-011-1184-2.

    Article  PubMed  Google Scholar 

  • Sameroff, A. J., & Fiese, B. H. (2000). Transactional regulation: The developmental ecology of early intervention. In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention (2nd ed., pp. 135–159). Cambridge, UK: Cambridge University Press.

    Chapter  Google Scholar 

  • Sansosti, F. J. (2010). Teaching social skills to children with autism spectrum disorders using tiers of support: A guide for school-based professionals. Psychology in the Schools, 47(3), 257–281.

    Google Scholar 

  • Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A. D., & Harchak, T. F. (2010). Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40, 620–628. doi:10.1007/s10803-009-0912-3.

    Article  PubMed  Google Scholar 

  • Schaaf, R. C., Toth-Cohen, S., Johnson, S. L., Outten, G., & Benevides, T. W. (2011). The everyday routines of families of children with autism: Examining the impact of sensory processing difficulties on the family. Autism, 1–17. doi:10.1177/1352351310386505.

  • Schertz, H. H., & Odom, S. L. (2007). Promoting joint attention in toddlers with autism: A parent-mediated developmental model. Journal of Autism and Developmental Disorders, 37(8), 1562–1575. doi:10.1007/s10803-006-0290-z.

    Article  PubMed  Google Scholar 

  • Schertz, H. H., Baker, C., Hurwitz, S., and Benner, L. (2010). Principles of early intervention reflected in toddler research in autism spectrum disorders. Topics in Early Childhood Special Education, 1–18.

  • Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Supplement), S114–S121. doi:10.1542/peds.2006-2089Q.

    Article  PubMed  Google Scholar 

  • Schieve, L. A., Boulet, S. L., Kogan, M. D., Yeargin-Allsopp, M., Boyle, C. A., Visser, S. N., et al. (2011). Parenting aggravation and autism spectrum disorders: 2007 national survey of children’s health. Disability and Health Journal, 4, 143–152. doi:10.1016/j.dhjo.2010.09.002.

    Article  PubMed  Google Scholar 

  • Schopler, E., & Reichler, R. (1981). Parents as co-therapists in the treatment of psychotic children. Journal of Autism and Childhood Schizophrenia, 1(1), 87–102.

    Article  Google Scholar 

  • Schopler, E., Mesibov, G., & Baker, A. (1982). Evaluation of treatment for autistic children and their parents. Journal of the American Academy of Child Psychiatry, 21(3), 262–267.

    Article  PubMed  Google Scholar 

  • Schreiber, C. (2010). Social skills interventions for children with high-functioning autism spectrum disorders. Journal of Positive Behavior Interventions, 13, 49–62. doi:10.1177/1098300709359027.

    Google Scholar 

  • Seltzer, M., Greenberg, J. S., Floyd, F. J., Pettee, Y., & Hong, J. (2001). Life course impacts of parenting a child with a disability. American Journal on Mental Retardation, 106(3), 265. doi:10.1352/0895-8017(2001)1062.0.CO;2.

    Article  PubMed  Google Scholar 

  • Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22(1), 19–28. doi:10.1080/13668259700033261.

    Article  Google Scholar 

  • Sheras, P. L., Abidin, R. R., & Konold, T. R. (1998). SIPA, stress index for parents of adolescents: Professional manual. Odessa, FL: Psychological Assessment Resources.

    Google Scholar 

  • Sherer, M. R., & Schreibman, L. (2005). Individual behavioral profiles and predictors of treatment effectiveness for children with autism. Journal of Consulting and Clinical Psychology, 73(3), 525–538. doi:10.1037/0022-006X.73.3.525.

    Article  PubMed  Google Scholar 

  • Shu, B. (2009). Quality of life of family caregivers of children with autism: The mother’s perspective. Autism, 13(1), 81–91. doi:10.1177/1362361307098517.

    Article  PubMed  Google Scholar 

  • Shyu, Y. L., Tsai, J., & Tsai, W. (2010). Explaining and selecting treatments for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40, 1323–1331. doi:10.1007/s10803-010-0991-1.

    Article  PubMed  Google Scholar 

  • Siller, M., & Sigman, M. (2002). The behaviors of parents of children with autism predict the subsequent development of their children’s communication. Journal of Autism and Developmental Disorders, 32(2), 77–89.

    Article  PubMed  Google Scholar 

  • Silva, L. M., & Schalock, M. (2012). Autism parenting stress index: Initial psychometric evidence. Journal of Autism and Developmental Disorders, 42, 566–574. doi:10.1007/s10803-011-1274-1.

    Article  PubMed  Google Scholar 

  • Singer, G. S. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155. doi:10.1352/0895-8017(2006)111[155:MOCSOD]2.0.CO;2.

    Article  PubMed  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Winton, A. S., Fisher, B. C., Wahler, R. G., Mcaleavey, K., et al. (2006). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorders, 14(3), 169–177. doi:10.1177/10634266060140030401.

    Article  Google Scholar 

  • Sivberg, B. (2002). Family system and coping behaviors: A comparison between parents of children with autistic spectrum disorders and parents with non-autistic children. Autism, 6(4), 397–409. doi:10.1177/1362361302006004006.

    Article  PubMed  Google Scholar 

  • Smith, T., Buch, G. A., & Gamby, T. E. (2000). Parent-directed, intensive early intervention for children with pervasive developmental disorder. Research in Developmental Disabilities, 21(4), 297–309. doi:10.1016/S0891-4222(00)00043-3.

    Article  PubMed  Google Scholar 

  • Smith, L. E., Hong, J., Seltzer, M. M., Greenberg, J. S., Almeida, D. M., & Bishop, S. L. (2010b). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(2), 167–178. doi:10.1007/s10803-009-0844-y.

    Article  PubMed  Google Scholar 

  • Smith, I. M., Koegel, R. L., Koegel, L. K., Openden, D. A., Fossum, K. L., & Bryson, S. E. (2010a). Effectiveness of a novel community-based early intervention model for children with autistic spectrum disorder. American Journal on Intellectual and Developmental Disabilities, 115(6), 504–523. doi:10.1352/1944-7558-115.6.504.

    Article  PubMed  Google Scholar 

  • Smith, T., & Lovaas, I. O. (1998). Intensive and early behavioral intervention with autism: The UCLA young autism project. Infants and Young Children, 10(3), 67–78.

    Google Scholar 

  • Smith, T., Scahill, L., Dawson, G., Guthrie, D., Lord, C., & Wagner, A. (2007). Designing research studies on psychosocial interventions in autism. Journal of Autism and Developmental Disorders, 37, 354–366. doi:10.1007/s10803-006-0173-3.

    Article  PubMed  Google Scholar 

  • Sofronoff, K., & Farbotko, M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with asperger syndrome. Autism, 6(3), 271–286. doi:10.1177/1362361302006003005.

    Article  PubMed  Google Scholar 

  • Sofronoff, K., Leslie, A., & Brown, W. (2004). Parent management training and asperger syndrome: A randomized controlled trial to evaluate a parent based intervention. Autism, 8(3), 301–317. doi:10.1177/1362361304045215.

    Article  PubMed  Google Scholar 

  • Solomon, M., Goodlin-Jones, B. L., & Anders, T. F. (2004). A social adjustment enhancement intervention for high functioning autism, asperger’s syndrome, and pervasive developmental disorder nos. Journal of Autism and Developmental Disorders, 34(6), 649–668. doi:10.1007/s10803-004-5286-y.

    Article  PubMed  Google Scholar 

  • Solomon, R., Necheles, J., Ferch, C., & Bruckman, D. (2007). Pilot study of a parent training program for young children with autism: The PLAY project home consultation program. Autism, 11(3), 205–224. doi:10.1177/1362361307076842.

    Article  PubMed  Google Scholar 

  • Solomon, M., Ono, M., Timmer, S., & Goodlin-Jones, B. (2008). The effectiveness of parent-child interaction therapy for families of children on the autism spectrum. Journal of Autism and Developmental Disorders, 38(9), 1767–1776. doi:10.1007/s10803-008-0567-5.

    Article  PubMed  Google Scholar 

  • Stewart, K. K., Carr, J. E., & LeBlanc, L. A. (2007). Evaluation of family-implemented behavioral skills training for teaching social skills to a child with asperger’s disorder. Clinical Case Studies, 6(3), 252–262. doi:10.1177/1534650106286940.

    Article  Google Scholar 

  • Stoddart, K. P. (1999). Adolescents with asperger syndrome. Autism, 3(3), 255–271.

    Article  Google Scholar 

  • Tehee, E., Honan, R., & Hevey, D. (2009). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22(1), 34–42. doi:10.1111/j.1468-3148.2008.00437.x.

    Article  Google Scholar 

  • The MTA Cooperative Group. (1999). Moderators and mediators of treatment response for children with attention-deficit/hyperactivity disorder: The multimodal treatment study of children with attention-deficit/hyperactivity disorder. Archives of General Psychiatry, 56, 1088–1096.

    Article  Google Scholar 

  • Tomanik, S., Harris, G., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. doi:10.1080/13668250410001662892.

    Article  Google Scholar 

  • Tonge, B., Brereton, A., Kiomall, M., Mackinnon, A., King, N., & Rinehart, N. (2006). Effects of parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 45(5), 561–569. doi:10.1097/01.chi.0000205701.48324.26.

    Article  PubMed  Google Scholar 

  • Vismara, L. A., & Rogers, S. J. (2008). The early start denver model: A case study of an innovative practice. Journal of Early Intervention, 31(1), 91–108. doi:10.1177/1053815108325578.

    Article  Google Scholar 

  • Vismara, L. A., Colombi, C., & Rogers, S. J. (2009). Can one hour per week of therapy lead to lasting changes in young children with autism? Autism, 13(1), 93–115. doi:10.1177/1362361307098516.

    Article  PubMed  Google Scholar 

  • Volkmar, F. R., & Pauls, D. (2003). Autism. The Lancet, 362, 1133–1141.

    Article  Google Scholar 

  • Wang, P. (2008). Effects of a parent training program on the interactive skills of parents of children with autism in China. Journal of Policy and Practice in Intellectual Disabilities, 5(2), 96–104. doi:10.1111/j.1741-1130.2008.00154.x.

    Article  Google Scholar 

  • Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities. Journal of Autism and Developmental Disorders, 41, 783–795. doi:10.1007/s10803-010-1099-3.

    Article  PubMed  Google Scholar 

  • Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. H., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127, 1303–1312.

    Article  Google Scholar 

  • Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115–130. doi:10.1177/1362361302006001009.

    Article  PubMed  Google Scholar 

  • Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M., & Lunsky, Y. (2012). The impact of child problem behaviors of children with ASD on parent mental health: The mediating role of acceptance and empowerment. Autism, 1–14. doi:10.1177/1362361311422708.

  • White, S., Koenig, K., & Scahill, L. (2007). Social skills development in children with autism spectrum disorders: A review of intervention research. Journal of Autism and Developmental Disorders, 37(10), 1858–1868. doi:10.1007/s10803-006-0320-x.

    Article  Google Scholar 

  • White, S. W., Albano, A. M., Johnson, C. R., Kasari, C., Ollendick, T., Klin, A., et al. (2010). Development of a cognitive-behavioral intervention program to treat anxiety and social deficits in teens with high-functioning autism. Clinical Child and Family Psychology Review, 13, 77–90. doi:10.1007/s10567-009-0062-3.

    Article  PubMed  Google Scholar 

  • Whittingham, K., Sofronoff, K., Sheffield, J., & Sanders, M. R. (2008). An exploration of parental attributions within the autism spectrum disorders population. Behaviour Change, 25(4), 201–214. doi:10.1375/bech.25.4.201.

    Article  Google Scholar 

  • Whittingham, K., Sofronoff, K., Sheffield, J., & Sanders, M. R. (2009). Stepping stones triple p: An RCT of a parenting program with parents of a child diagnosed with an autism spectrum disorder. Journal of Abnormal Child Psychology, 37(4), 469–480. doi:10.1007/s10802-008-9285-x.

    Article  PubMed  Google Scholar 

  • Wolf, L. C., Noh, S., Fisman, S. N., & Speechley, M. (1989). Brief report: Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders, 19(1), 157–166. doi:10.1007/BF02212727.

    Article  PubMed  Google Scholar 

  • Wood, J. J., Drahota, A., Sze, K., Dyke, M., Decker, K., Fujii, C., et al. (2009). Brief report: Effects of cognitive-behavioral therapy on parent-reported autism symptoms in school-age children with high-functioning autism. Journal of Autism and Developmental Disorders, 39(11), 1608–1612. doi:10.1007/s10803-009-0791-7.

    Article  PubMed  Google Scholar 

  • Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18(8), 1075–1083. doi:10.1177/1049732308320112.

    Article  PubMed  Google Scholar 

  • Yamada, A., Suzuki, M., Kato, M., Suzuki, M., Tanaka, S., Shindo, T., et al. (2007). Emotional distress and its correlates among parents of children with pervasive developmental disorders. Psychiatry and clinical neurosciences, 61, 651–657. doi:10.1111/j.1440-1819.2007.01736.x.

    Article  PubMed  Google Scholar 

  • Zaidman-Zait, A., Miredna, P., Zumbod, B. D., Georgiades, S., Szatmari, P., Bryson, S., et al. (2011). Factor analysis of the Parenting Stress Index—Short Form with parents of young children with autism spectrum disorders. Autism Research, 4(5), 336–346. doi:10.1002/aur.213.

    Article  PubMed  Google Scholar 

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  1. Marquette University, 604 N 16th St, Cramer Hall #307, Milwaukee, WI, 53201, USA

    Jeffrey S. Karst

  2. Marquette University, Cramer Hall 328A, PO Box 1881, Milwaukee, WI, 53201, USA

    Amy Vaughan Van Hecke

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Karst, J.S., Van Hecke, A.V. Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation. Clin Child Fam Psychol Rev 15, 247–277 (2012). https://doi.org/10.1007/s10567-012-0119-6

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