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Erschienen in: memo - Magazine of European Medical Oncology 3/2019

02.08.2019 | short review

Cure is not enough! Why it is time to act and close the gap

Survivors speaking up

verfasst von: Carina Schneider, Jaap den Hartogh, Katharina Feckter, Zuzana Tomášiková, Anita Kienesberger, CCI Europe Survivors Network, CCI Europe

Erschienen in: memo - Magazine of European Medical Oncology | Ausgabe 3/2019

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Summary

Purpose

Good news: Survival rates in childhood cancer have increased from 20% up to over 80% in Europe, depending on cancer type and country. Not so good news: This great success comes with the price that up to 60 to 70% of childhood cancer survivors suffer from cancer- and treatment-related long-term effects that need life-long follow-up care. Bad news: transition from paediatric health care to adult health care still poses a great problem for childhood cancer survivors due to the lack of adequate long-term care structures for adult survivors of childhood cancer.

Patients and methods

Ongoing initiatives and projects driven forward jointly by survivors, parents and health care professionals tackle this gap: Childhood Cancer International Europe (CCI-E) and its Survivors Network (CCI-ESN), the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (PanCare) and the European Society for Paediatric Oncology (SIOP Europe) are working on and advocating for better long-term follow-up care structures across Europe.

Results

Three ongoing best practice projects are presented—each reflecting one important element in the delivery and provision of comprehensive long-term follow-up care: The PanCareFollowUp Project, the Survivorship-Passport and the ZONE-project.

Conclusion

The Childhood Cancer International Europe Survivors Network call for action: We need the support of politicians and our health care systems to make sure that every single survivor gets the long-term care that they need. So #RaiseYourHands4Survivors and help us close the gap!
Fußnoten
1
ZONE is the German acronym for the project “Centre for oncological follow-up of adult Survivors (of childhood cancer)”.
 
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Metadaten
Titel
Cure is not enough! Why it is time to act and close the gap
Survivors speaking up
verfasst von
Carina Schneider
Jaap den Hartogh
Katharina Feckter
Zuzana Tomášiková
Anita Kienesberger
CCI Europe Survivors Network
CCI Europe
Publikationsdatum
02.08.2019
Verlag
Springer Vienna
Erschienen in
memo - Magazine of European Medical Oncology / Ausgabe 3/2019
Print ISSN: 1865-5041
Elektronische ISSN: 1865-5076
DOI
https://doi.org/10.1007/s12254-019-0508-3